My Life With Jim

Dementia Makes A Strange Bedfellow
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When your spouse is diagnosed with Dementia your whole world changes. Not only do you lose the intimacy and support of your partner, you must also become a parent to the person you have always depended on to share the load. It is heartbreaking. It is overwhelming. Some days if feels like you are in a free-fall with no hope of a soft landing. This blog is written about my journey as I lose my husband Jim, to Dementia. If you are traveling a similar path, I hope that somewhere in these posts you can find support in the knowledge that you are not alone and some tools and tips to help you cope with the challenges within your own journey.

Newest Memory Downturn

December 18, 2020December 16, 2020 Wife of JimProgressionDementia ProgressionNew layer of memory loss

  I’ve become used to repeating things several times. Jim will come to ask be about something, turn away after I answer and then turn back and say, “I meant to ask you…” and then ask me the same question again. This has become our normal. When getting ready to post Christmas cards for his ….  Read More

Moving At A Snail’s Pace

December 14, 2020December 16, 2020 Wife of JimCopingProgressionDementia slows everything

  Going anywhere is excruciatingly these days. Jim has always been the guy who said that he’d rather be two hours early than two minutes late. Even though I hate being late as well, he used to get impatient with me because when he said he wanted to leave at 8, he meant be in ….  Read More

Fools Paradise

December 11, 2020January 25, 2021 Wife of JimCopingImtimacy LossSelf Care

  Lying in bed at night I can almost pretend that our life is normal. Jim curls around me when I crawl under the covers and his arm is a comfortable weight as he holds me close. Just the two of us, skin to skin, intimate and peaceful together. This is what the caregiving books ….  Read More

The Battle Of ‘Meh’

December 7, 2020December 7, 2020 Wife of JimCopingSelf Carecaregiver depressioncoping with depression

  I thought I was immune. I’ve read enough to understand the risks, I’ve done due diligence to ensure it never happens to me and I’ve been trying to talk myself into getting my ass in gear and yet, I’m still falling into the pit. I hate calling it depression because to me, this does ….  Read More

Please Don’t Leaf Me This Way

November 12, 2020November 12, 2020 Wife of JimCopingProgression

  This past two weeks have been exhausting. All because of the leaves on the lawn. This has been an odd fall. The leaves on our big maple out front didn’t turn colour until Sunday, 1st of November and then it was overnight that the leaves changed and started to fall. By Wednesday, over half ….  Read More

Losing His Game

November 2, 2020November 2, 2020 Wife of JimProgressionDementia ProgressionLosing the hobbies we love to Dementia

  This first happened last week and I didn’t think anything of it. Jim had turned on the television to see if there was any football games. It was Saturday and they usually replayed games from earlier this season, or from seasons past.  When I came into the room, I realized he was watching the ….  Read More

October 2020 Pulse Check

October 31, 2020October 30, 2020 Wife of JimProgressionDementia Progressionpulse check for Dememtia

I think it’s time to do a quick pulse check to see where we are before the holiday season approaches. Being alone in the city is bitter sweet. Bitter because there isn’t any family around to spend time with. I’m sure it doesn’t help Jim’s brain that I’m the only person he can converse with ….  Read More

Managing Expectations

September 16, 2020September 16, 2020 Wife of JimCopingProgressionManaging Expectations during Dementia Care

  As Dementia progresses, consistency goes out of the window. It’s hard not to get frustrated. Some days, our discussions stick, Jim gets irritated with me when I repeat directions because this time, he remembered the first time.  Other days, I feel like a broken record. Today, Jim had a good morning. He seemed sharp ….  Read More

Diagnosis – Part 3 – The 4 Month Follow-Up & Medication Discussion

August 18, 2020September 28, 2020 Wife of JimProgressionDementia Diagnosis

I was kind of dreading the follow-up appointment with the doctor who diagnosed Jim with Dementia. Not because I was uncomfortable with the appointment but because Jim is still fixated on that ass of a doctor who told him he couldn’t drive anymore. There was no way to control what would come out of Jim’s ….  Read More

Zoey’s Extraordinary Playlist and Funeral Planning

May 4, 2020January 25, 2021 Wife of JimCopingGrievingpersonalized urnsplanning a funeraltv show to help you grieve

Zoey’s Extraordinary Playlist was a new TV show this year and it looked like a fun premise and God knows we all need a little lift to our spirits every once in a while. The show is about Zoey, a woman in her early 30s who is fearful that her headaches are a sign that ….  Read More

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